✒️ I write about life with severe #ChronicPain related to #SpA #PsA #MEcfs #fibromyalgia #APS
🦋 MySeveralWorlds.com
👩🦼 #DisabilityAdvocate
🤝 Team Fibro & Spondylitis
🎨 DISABLED ARTIST
🌴 https://linktr.ee/myseveralworlds
I qualified for a caseworker to help manage #ChronicIllness in Canada. After 5 months here, I can say with certainty that Canadian healthcare is all over the place. It is a heavy burden on patients. I don't know how many more times I have to explain, but I DO know everyone sees how serious it is.
Thank you @achronicvoice.com for sharing my blog post on the realities of living with a #DynamicDisability. It’s very much appreciated! 🫶
"Metaphors are keys for opening the doors to understanding, for illustrating concepts that the average person is able to relate to.
Despite living w #ChronicIllness for 20+ years, I realise that there is still so much I don’t know about."
🔗
www.achronicvoice.com/2016/04/11/q...
@achronicvoice.com
"We often tell ourselves or others to be strong. Instead of instilling inspiration... it becomes another standard we have to meet. You don’t have to be strong all the time. One small step forward is still a powerful act." Via @achronicvoice.com
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www.achronicvoice.com/2018/05/13/y...
#ChronicPain
I smile through the pain…nausea…exhaustion…I have really bad days and those far outnumber the good. They can be absolutely awful… I’d give anything for a cure but since that’s not reality now—I play the hand I was dealt.”
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buff.ly/3vPhveX #CRPS
via @apainprincess.bsky.social
“A lot of people think that #RheumatoidArthritis is just bad #arthritis, and it’s not. It’s systemic. It can attack your lungs and kidneys and you can get vasculitis. The chances of going into remission are very low, probably less than 5%."
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www.ama-assn.org/delivering-c...
"There is a severe shortage of pain specialists with approximately 30,000 Americans in pain for every board certified pain specialist. This shortage is caused by a difficult path to specializing in pain treatment plus negative public scrutiny."
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www.practicalpainmanagement.com/resources/et...
PAIN LEVELS
Average person:
Normal day.
Go to ER.
Chronically ill person:
Our normal day starts at the pain level an average person would go to ER.
When it is twice as bad, we *think* about going to ER, but most of us don't.
@spooniesaga
#MySeveralWorlds #LifeWithPain #ChronicTruths
Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.
#Spoonie #ChronicIllness #Pacing
Reminder: rest is not giving up. Rest is how your body heals. You don't have to earn the right to take care of yourself.
#Spoonie #ChronicPain #SelfCare
