Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
Wilhelmina Jenkins
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ME/CFS community! Please, if you are able, come to the community meeting held by #MEAction on tomorrow - Sunday, June 14 at 3 PM ET. We are facing a changed advocacy environment, and to make any progress, we have to forge new paths and move forward together. Come tomorrow and see where we stand.
☕ Join us Wed, June 10 at 10:00 am MDT
Section 4.7 Management of PEM
This session will explore pacing, energy conservation, symptom tracking, supportive interventions, and individualized routines that may help support symptom stability and reduce PEM crashes.
Register: https://bit.ly/3JCHAFq
Wilhelmina Jenkins
Bateman Horne Center
REMINDER! Join us for a community meeting TOMORROW - June 14th at 3 pm ET to hear about the next steps #MEAction is taking in US advocacy, and what steps you can take to be part of these efforts. https://ow.ly/p1jM50ZablP
#PwME #MillionsMissing #FrailAndFurious #MyalgicEncephalomyelitis #MECFS
Join us for a community meeting on Sunday, June 14th at 3:00pm ET to hear about the next steps #MEAction is taking in US advocacy, and what steps you can take to be part of these efforts. https://ow.ly/p1jM50ZablP
#PwME #MillionsMissing #FrailAndFurious #MyalgicEncephalomyelitis #MECFS
#MEAction Network
#MEAction Network
Check out @meighanstone.bsky.social offering a brilliant clap back to the Alan Levinovitz article for WIRED. #longcovid requires science, not brain retraining. And no, demons are not to blame for your disease. #mecfs #millionsmissing
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Today @thesicktimes.org: We republished a great essay from @sunsopeningband.bsky.social, responding to last week's WIRED piece.
"Any claim that exercise still needs to be tested is not made from a position of impartiality. These claims are made from the decision to ignore the existing literature."
Watch now! View the recording of our webinar "Sequence ME & #LongCovid: The Search for #MECFS and Long Covid Biomarkers and Subtypes," featuring the DecodeME Management Team.
https://youtu.be/v6VQ2593m-8
From our friends at @solveme.bsky.social!
Take action today by submitting a comment and contacting Congress. Thanks to Solve M.E. for organizing this response on this critical issue.
Miranda shares her experience as a #pwME & shares her advocacy within the disability and unhoused community at #MillionsMissing. Miranda goes on to explain that #Medicaid is the main pathway to get home care and home care is the main pathway to safety.
https://youtu.be/sn6RWKmnT3Q
