Navigating life with Long Covid.
Dreaming about disability justice, anti-ageism, poetry, policy, the sky & the sea.
🖤🖤🖤
Yvonne
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Food insecurity affects more families now than during the coronavirus pandemic, according to a new survey from the Federal Reserve Bank of New York. n.pr/4nWXXfN
“The annual transition from death to rebirth – propelled irrepressibly forwards – deepens the feeling that we are out of sync with the rest of the ecosphere and with our fellow humans now expanding into life as the days lengthen.” Beautiful contemplations in this piece. #LongCovid #mecfs
Oops I didn’t quote post the part with the article. Heat + dysautonomia tribulations! bsky.app/profile/bhan...
Food insecurity affects more families now than during the coronavirus pandemic, according to a new survey from the Federal Reserve Bank of New York.
Long COVID will cost the US an estimated $8 billion over just 3 years due to healthcare burden, managing symptoms and loss to the workforce
theconversation.com/long-covid-w...
#LongCovid #publichealth #economics #CDC #FDA #NIH
Many older adults who died of COVID weren’t close to death before infection, study suggests
"About 28% of older people in England who died of COVID-19 in the first 2.5 years of the pandemic would likely, if uninfected, have lived at least another 5 years"
Source: www.cidrap.umn.edu/covid-19/man...
#LongCovid has not decreased from 2020-2024.
Prevalence is 13-23% of US population, increasing 0.4%-1.5% every 3 months.
Incidence was 10-29%, but began increasing in 2023.
"These findings indicate an accumulating rather than resolving disease burden."
jamanetwork.com/journals/jam...
Post exertional malaise (PEM) is the hallmark symptom of #MECFS
It’s not fatigue following activity. It is a dramatic deterioration and worsening of symptoms.
Short video explainer - triggers, symptoms, and management.
Repost for the last day of #MEAwarenessMonth
“Ballard is the first ever contestant in Miss Wheelchair America who uses a wheelchair because of long COVID, which presents a fresh opportunity to educate.”
Video
Did you know? Long COVID is recognized as a possible disability under the Americans with Disabilities Act. Talk to your doctor if after having COVID-19 you're experiencing new or ongoing symptoms limiting your daily life, & learn more about #LongCOVID as a disability: www.hhs.gov/civil-rights...
“Imagine you must operate on 15% energy, at your best. If you go into the red it can take days, weeks or months to recover, and only to 15%.”
Úna, Ireland, living with myalgic encephalomyelitis since 1982
Yvonne
Ian Kremer
Durham County Department of Public Health (DCoDPH)
Denis - The COVID Info Guy
Hannah Davis
Adam
The US lacks the capacity to treat long COVID, and HHS defunding is taking the country further away from being able to handle the country’s growing number of long COVID cases.
