Previously a psychotherapist.
Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
Carole Bruce
Blame is society’s bulwark against the inevitability of illness. Anyone can become ill and not recover and yet the medical profession and society in general make patients feel as if their illness was due to their maladaptive feelings, or poor behaviour rather than lack of any effective treatment #ME
Vote Reform for mass unemployment. If Farage and Tice win, they'll destroy a million jobs, while offering nothing in return. Spread the word: for the sake of their billionaire funders, they will throw you out of work.
This week's column.
www.theguardian.com/commentisfre...
New article from the team of @profmarkfaghy.bsky.social highlighting how lived experience should be part of all stages of research and not simply tokenistic.
Patients are the expert in their condition and there is always more to hear and learn from them.
link.springer.com/content/pdf/...
💫 UPDATE: We had a lovely friend of LCA hand deliver the Open Letter to @subodhdave1 President-elect of The Royal College of Psychiatrists
Signed by 58 orgs & 1200+ people! 💙
His secretary will ensure it is handed (all 16 pages of signatures) to him tomorrow.
#RCPsychIC
More about the letter👇
Not that we need more evidence of genocidal intent to recognise what we are seeing. But deliberately shooting children? That's about as clear as it gets. #Gaza www.volkskrant.nl/kijkverder/v...
@actionforme.bsky.social
@meactionuk.bsky.social
@meassociation.org.uk
Pls could you create a site as @murtoz.bsky.social suggested to keep track of #SevereME & #VerySevereME ppl in hospital, latest updates & how to help?
It’s v.quick & cheap to do
We need to track abuse to properly evidence it
From Professor Chris Ponting on #ME:
Carole Bruce
We’ve already got the 3rd highest defence spend in Europe. Far more than Norway, Sweden and Denmark where public spending on healthcare, education and infrastructure is rightfully prioritised. We are not an Empire any longer we and don’t want to line the pockets of US contractors
My timeline today all over social media is an absolute delight, what a legacy from David Hockney. Very sad he’s died but, my goodness, he’s brightened so many lives with his art and his stories. I hope he’s an inspiration to the young with two fingers to the misery of today’s world.
Highlights from recent German TV that looked at brain retraining for #MECFS.
A doctor with #MECFS says the programme made her feel she just had to keep trying harder. She eventually suffered a severe crash.
She is “angry” and says that these programmes are endangering people.
Claims that our prosperity depends on oil and gas are bunkum – unless you’re a Reform backer with fossil fuel interests, of course, says Guardian columnist George Monbiot
Doctors in Gaza observed a disturbing pattern: children with a single gunshot wound to the head or chest, a sign that they had been deliberately targeted. This emerges from research by de Volkskrant, ...
