SMA Europe is a non-profit umbrella organisation of spinal muscular atrophy (SMA) patient organisations from across Europe. All together. One goal.
Visit our website: https://www.sma-europe.eu/
SMA Europe
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From 28–30 May, SMA Europe gathered in Helsinki for our Annual Meetings 2026, kindly supported by SMA Finland. Together, we shared best practices, discussed our Strategic Framework 2026–2030, and aligned on advocacy priorities.
Together #WeAreOne.
Don’t miss our upcoming SMAcademy webinar! 📣 “Patient Experience Data: Turning lived experience into meaningful data”
🗓️ 17 June 2026
⏰ 14:30–16:00 CET
Explore how SMA communities can turn lived experience into meaningful data for advocacy, research, and care.
đź”— https://bit.ly/4uWdnmE
#SMA #WeAreOne
SMA Europe was pleased to participate in #ECRD2026 held in Prague. We also took part in the Blueprint workshop and presented our poster: “Patients in the lead: embedding patient-led processes across advocacy domains at SMA Europe.” 🔗 https://www.sma-europe.eu/resources
#RareDiseases #WeAreOne
Today is Clinical Trials Day đź’ś
“Clinical trials mean hope and progress for the SMA community.” Simona Joveska, Board Member at SMA Europe.Â
📲 Scan the QR code to explore SMA Europe’s Clinical Trials Finder.
Together, #WeAreOne 🌍
#ClinicalTrialsDay #SMA
📣 Save the Date: SMA Europe is pleased to announce the 2nd International Clinical Care Symposium on Spinal Muscular Atrophy (SMA), taking place on 4–5 March 2027 in Prague: "Musculoskeletal Care in SMA: From Research to Rehabilitation." https://www.sma-europe.eu/clinical-care-symposium-prague-2027
For 20 years, SMA Europe has supported research, access, and community.
Clinical Trials Finder: đź”— https://clinical-trials.sma-europe.eu/
EUPESMA results on the clinical trials here: đź”—https://heyzine.com/flip-book/9c8efc8e88.html
Together, we move research forward. #WeAreOne
#ClinicalTrialsDay #SMA
Applications open for SMA Patient Advocate Training
đź“… Deadline: 30 June
đź”— https://www.sma-europe.eu/sma-patient-advocate-training
#SMA #PatientAdvocacy #Awareness #Training #Advocacy
Reminder: SMA Patient Advocate Training
đź“… Apply by 30 June
Build your advocacy for Spinal Muscular Atrophy
đź”— https://www.sma-europe.eu/sma-patient-advocate-training
#SMA #PatientAdvocacy #Training #Advocacy
📅 Save the date: 4–5 March 2027!
SMA Europe’s 2nd International Clinical Care Symposium on SMA will take place in Prague, focusing on “Musculoskeletal Care in SMA: From Research to Rehabilitation.”
More info: https://www.sma-europe.eu/clinical-care-symposium-prague-2027
#sma #symposium #awareness
Join our new SMAcademy webinar đź“Ł
“Patient Experience Data: Turning lived experience into meaningful data”
🗓️ 17 June 2026
⏰ 14:30–16:00 CET
Explore how SMA communities can turn lived experience into meaningful data for advocacy, research, and care.
đź”— https://bit.ly/4uWdnmE
#SMAcademy #WeAreOne
